Money. Great if you have it, or so I hear. I assume if you have money though you have to worry about keeping it and maintaining a certain lifestyle that comes with it. For my family, and many others, money is a tricky subject. When Evan first found out he had an unknown mass he had just started a new job and I was teaching. Wouldn’t you know that the enrollment period for my insurance wasn’t until October and it was May. BlueCross BlueShield State would not add him to my insurance unless he had recently lost coverage, but he never had any to lose so that was a dead end until October, and Evan was in need of a biopsy as soon as the steroids were out of his system.
We looked into Medicaid, but I made $200 over the income limit/poverty line…so there was another dead end. Now, a hospital can’t refuse treatment because you don’t have insurance so we were able to get his biopsy done and even accrued debt for his radiation. But, Evan applied for disability and medicaid at the same time and we found out he would be “awarded” disability. The only catch is that he would have to wait six months before he would actually receive disability, but medicaid would go into effect. To be honest, I didn’t want to question anything. The point was that he needed insurance. We couldn’t afford all of his prescriptions after he was first released from the hospital. We had to borrow money from family, and my co-workers at the time even pulled funds together–their reasoning was for us to get a second opinion (which I will discuss later), but we had to use it toward the $800 tab for one months supply of pills.
Now I have to seriously consider my working situation. Apparently Evan wouldn’t get medicaid if I was working. I was working to help cover his medical expenses. We just received the bill for Evan’s chemotherapy medicine. He will be taking temodar, should get the approval to start on the 18th, five days a month. He will be taking two pills each day. The bill comes out to be a little under four thousand dollars. This is per month. How in the hell does anyone afford this? Evan thankfully has medicaid to cover this expense. I just don’t understand how these pills that are necessary to save someone’s life can be so unaffordable when amenities like aspirin, or even pain pills with the right doctor or dealer, are easily accessible. How are people supposed to live?
If you are in need of financial help look into government assistance; there is no shame. If you have cancer the American Cancer Society can help; I just found out today we can get one time help with rent and other bills. Another source of help for my situation is the American Brain Tumor Association. Reach out and use your resources. There are fundraiser outlets to utilize as well. We are using youcaring.com but there are others out there to explore.
Money is a tricky thing. You are damned if you have it, damned if you don’t.